ONLINE WORKSHOP

Our Rights to Health in Africa: A Type 1 Diabetes Youth Advocacy Workshop

Monday 14th June 2021

21:00 – 22:30 EAT

20:00 – 21:30 SAST/CEST

19:00 – 20:30 BST

18:00 – 19:30 GMT

Languages: English and French

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Join us for a practical workshop where we will hear country perspectives on implementing advocacy initiatives for type 1 diabetes (T1D) and other noncommunicable diseases (NCDs) rooted in a rights-based approach.

Speakers will include young people, caregivers, and health care professionals from Ethiopia, Tanzania, Mali, Uganda, Kenya and Zimbabwe. The workshop will focus on experiences from Africa, but translatable techniques will be discussed and all across the globe are welcome to join!

Participants will come away from the workshop with:

  • A strengthened understanding of what advocacy, rooted in a Rights-Based Approach, looks like for T1D.
  • Increased comprehension of country-level case studies where local advocacy has impacted policy changes in provision of T1D/NCD care.
  • An ability to identify specific tools that can be used to drive rights based advocacy approaches.
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Presented in partnership with:

Special Guest and Keynote Speaker

Moderator

Special Guest and Keynote Speaker

South Africa

Dr Tlaleng Mofokeng

The United Nations Special Rapporteur on the Right to Health

Tlaleng is the United Nations Special Rapporteur on the right of everyone to the enjoyment of the highest attainable standard of physical and mental health. She is a medical doctor with expertise advocating for universal health access, HIV care, youth friendly services and family planning.

Tlaleng has experience in advocacy training for healthcare professionals and her areas of focus have been on gender equality, policy, maternal and neonatal health, universal health access, post violence care, menstrual health, and HIV management.

Tlaleng has been Commissioner at the Commission for Gender Equality in South Africa and advisor to the Technical Committee for the National Adolescent Sexual and Reproductive Health and Rights Framework Strategy in South Africa, successfully mobilizing across movements working on issues of children and adolescents, persons with disabilities, migrants and persons living with HIV/AIDS.

Moderator

Mark Barone

Brazil

Dr Mark Barone

Vice-President, International Diabetes Federation

Mark is a diabetes researcher, educator, and partnerships builder. He holds a PhD in Human Physiology and has more than two decades of experience in developing health programs, and empowering people with type 1 to become change-makers.

Mark is currently Vice-President of the International Diabetes Federation (IDF), Founder and General Manager of the Intersectoral Forum to Fight NCDs in Brazil (ForumDCNTs). He has joined ADJ Diabetes Brasil in movements that led to the full coverage of diabetes care in the public health system and continues to work with multiple partners to co-create and recommend improvements of health policies in Brazil.

Meet the Speakers

Uganda

Dr Andrew Twineamatsiko

NCD Advocate and Physician

Andrew Twineamatsiko is a Ugandan Medical Doctor, Global Health enthusiast, passionate about NCDs and child health. He has led CLAN’s community-based initiatives in Uganda supporting the Nodding Syndrome communities and now the Epilepsy communities. Dr. Andrew is also involved in the care for persons with Diabetes, member of YPCDN and UNCDA.

Zimbabwe

Yemurai Machirori

T1D Advocate

Yemurai is a diabetes advocate from Zimbabwe. She is passionate about diabetes especially in children and believes that no child should have to stop dreaming because their parents cannot afford insulin. Yemurai was diagnosed with diabetes in 2004 and has been involved in diabetes advocacy since the age of 18. Besides her own lived experience, Yemurai values other people's lived experiences and uses them to see diabetes from a more wholesome perspective.

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Ethiopia

Tsegamlak Zerihun Tsigie

Life for a Child Project Officer

Tsegamlak is a person living with type 1 diabetes, NCD Advocate and Young Leader in Diabetes Alumni. Further than Diabetes and NCD work, he is a founder of Gugu Recycled Crafts and member of Finot Rotary Club in Addis Abeba Ethiopia.
He is a graduate of Urban and Regional Planning from the Ethiopian Institute of Architecture, Building Construction and City Development.


Uganda

Jackie Namara Rukare

Co-founder, sugarCUBES; diab-Mom

Jackie is the co-founder of SUGARc.u.b.e.s, a diabetes support group that provides education and advocacy services for children and families living with diabetes. The support group was created to provide a safe space for children and families to come to terms with having a child with diabetes and ensure that the children grow into healthy and productive adults.

Kenya

Joab Wako

Executive Director of Transplant Education Kenya

Joab Wako is the Executive Director of Transplant Education Kenya and a kidney transplant recipient. He studied industrial engineering at Jacksonville State University, specializing in applied manufacturing engineering. His lived experience with chronic kidney disease has made him a passionate advocate for universal health coverage.

Mali

Stéphane Besançon

CEO of the NGO Santé Diabète

Stéphane is a biologist and nutritionist working in Mali, with expertise in nutritional physiopathology and international development.
In 2001 Stéphane co-founded the international NGO Santé Diabète with a group of specialists in diabetes, health and development with the aim of improving the prevention and management of diabetes in Africa.

Tanzania

Dr George Msengi

NCD Advocate and Physician

Dr. George Msengi is a Tanzanian physician and a Vibrant NCDs youth advocate. He volunteers with multiple screening and health educational programs in his community. He also holds leadership roles as the secretariat of the African NCDs Network and sits as a governing council member with NCD child. He is a member of the WHO’s Civil Society Working Group on NCDs as a co-leader of the Advocacy and Communication steering group.

Kenya

John Okoth Andhoga

T1D Advocate

John Okoth Andhoga is a person living with type 1 diabetes and fifth-year medical student at the University of Nairobi. Having passed through the numerous “usual” challenges in the initial stages of his diabetes diagnosis, his passion has been to help children living with diabetes lead a normal life that is free of obstacles to their ambitions. This is what drives him as a Pamojan advocate.

Meet the Panelists

Australia

Dr Frank Brennan

Palliative Care Physician and Lawyer

Frank Brennan is a Palliative Care physician and lawyer based in Sydney, Australia.
He has a strong interest in health and human rights and has written extensively on the human
rights dimensions of pain management and Palliative Care. As a junior doctor he traveled to
and worked in South Africa where he completed Diplomas in Child Health and Obstetrics.

Dr Graham Ogle

Australia

Dr Graham Ogle

General Manager, Life for a Child

Graham is Life for a Child's General Manager and an Adjunct Professor at the University of Sydney. He trained in paediatric endocrinology in Australia, before working in Papua New Guinea and Cambodia, delivering health care to vulnerable communities for 6 years.

In 2000, he and Professor Martin Silink established the Life for a Child program with the vision: No child should die of diabetes.

Australia

Dr Kate Armstrong

President, CLAN (Caring & Living As Neighbours)

Kate works as a Public Health Physician, and founded CLAN in 2004. CLAN is an Australian NGO committed to equity for children and young people living with chronic health conditions in resource poor settings. CLAN facilitates a rights-based, community development approach to collaborative action, working with communities of children living with a range of chronic conditions (including Diabetes, Congenital Adrenal Hyperplasia, Osteogenesis Imperfecta, Epilepsy and Nephrotic Syndrome) across varied cultures and countries (including Vietnam, Indonesia, the Philippines, Pakistan, Fiji, Uganda and Kenya), with a vision that together we #LeaveNoChildBehind.

U.K.

Emma Klatman

Global Policy and Advocacy Manager, Life for a Child.

Emma is Global Policy & Advocacy Manager for LFAC. She works with partners to encourage evidence-based advocacy initiatives that underpin the sustainable provision of adequate T1D care. Emma has been engaged in advocacy since she was diagnosed with T1D in 1999. She has witnessed firsthand the impacts that community initiatives and advancements in diabetes care have had on her own health outcomes, and believes everyone with T1D should be given the opportunity to live safe and healthy lives.

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Join me at this #T1D advocacy workshop where we'll hear how young people are using advocacy initiatives to drive change. Let’s come together, share knowledge, and make a difference for young people living with #diabetes!
Monday 14 June
Register: lifeforachild.org/workshop