Our Rights to Health in Africa: A Type 1 Diabetes Youth Advocacy Workshop
Monday 14th June 2021
21:00 – 22:30 EAT
20:00 – 21:30 SAST/CEST
19:00 – 20:30 BST
18:00 – 19:30 GMT
Languages: English and French
Join us for a practical workshop where we will hear country perspectives on implementing advocacy initiatives for type 1 diabetes (T1D) and other noncommunicable diseases (NCDs) rooted in a rights-based approach.
Speakers will include young people, caregivers, and health care professionals from Ethiopia, Tanzania, Mali, Uganda, Kenya and Zimbabwe. The workshop will focus on experiences from Africa, but translatable techniques will be discussed and all across the globe are welcome to join!
Participants will come away from the workshop with:
- A strengthened understanding of what advocacy, rooted in a Rights-Based Approach, looks like for T1D.
- Increased comprehension of country-level case studies where local advocacy has impacted policy changes in provision of T1D/NCD care.
- An ability to identify specific tools that can be used to drive rights based advocacy approaches.
Presented in partnership with:
Special Guest and Keynote Speaker
Special Guest and Keynote Speaker
Dr Tlaleng Mofokeng
The United Nations Special Rapporteur on the Right to Health
Tlaleng is the United Nations Special Rapporteur on the right of everyone to the enjoyment of the highest attainable standard of physical and mental health. She is a medical doctor with expertise advocating for universal health access, HIV care, youth friendly services and family planning.
Tlaleng has experience in advocacy training for healthcare professionals and her areas of focus have been on gender equality, policy, maternal and neonatal health, universal health access, post violence care, menstrual health, and HIV management.
Tlaleng has been Commissioner at the Commission for Gender Equality in South Africa and advisor to the Technical Committee for the National Adolescent Sexual and Reproductive Health and Rights Framework Strategy in South Africa, successfully mobilizing across movements working on issues of children and adolescents, persons with disabilities, migrants and persons living with HIV/AIDS.
Dr Mark Barone
Vice-President, International Diabetes Federation
Mark is a diabetes researcher, educator, and partnerships builder. He holds a PhD in Human Physiology and has more than two decades of experience in developing health programs, and empowering people with type 1 to become change-makers.
Mark is currently Vice-President of the International Diabetes Federation (IDF), Founder and General Manager of the Intersectoral Forum to Fight NCDs in Brazil (ForumDCNTs). He has joined ADJ Diabetes Brasil in movements that led to the full coverage of diabetes care in the public health system and continues to work with multiple partners to co-create and recommend improvements of health policies in Brazil.
Meet the Speakers
Dr Andrew Twineamatsiko
NCD Advocate and Physician
Andrew Twineamatsiko is a Ugandan Medical Doctor, Global Health enthusiast, passionate about NCDs and child health. He has led CLAN’s community-based initiatives in Uganda supporting the Nodding Syndrome communities and now the Epilepsy communities. Dr. Andrew is also involved in the care for persons with Diabetes, member of YPCDN and UNCDA.
Yemurai is a diabetes advocate from Zimbabwe. She is passionate about diabetes especially in children and believes that no child should have to stop dreaming because their parents cannot afford insulin. Yemurai was diagnosed with diabetes in 2004 and has been involved in diabetes advocacy since the age of 18. Besides her own lived experience, Yemurai values other people's lived experiences and uses them to see diabetes from a more wholesome perspective.
Tsegamlak Zerihun Tsigie
Life for a Child Project Officer
Tsegamlak is a person living with type 1 diabetes, NCD Advocate and Young Leader in Diabetes Alumni. Further than Diabetes and NCD work, he is a founder of Gugu Recycled Crafts and member of Finot Rotary Club in Addis Abeba Ethiopia.
He is a graduate of Urban and Regional Planning from the Ethiopian Institute of Architecture, Building Construction and City Development.
Jackie Namara Rukare
Co-founder, sugarCUBES; diab-Mom
Jackie is the co-founder of SUGARc.u.b.e.s, a diabetes support group that provides education and advocacy services for children and families living with diabetes. The support group was created to provide a safe space for children and families to come to terms with having a child with diabetes and ensure that the children grow into healthy and productive adults.
Executive Director of Transplant Education Kenya
Joab Wako is the Executive Director of Transplant Education Kenya and a kidney transplant recipient. He studied industrial engineering at Jacksonville State University, specializing in applied manufacturing engineering. His lived experience with chronic kidney disease has made him a passionate advocate for universal health coverage.
CEO of the NGO Santé Diabète
Stéphane is a biologist and nutritionist working in Mali, with expertise in nutritional physiopathology and international development.
In 2001 Stéphane co-founded the international NGO Santé Diabète with a group of specialists in diabetes, health and development with the aim of improving the prevention and management of diabetes in Africa.
Dr George Msengi
NCD Advocate and Physician
Dr. George Msengi is a Tanzanian physician and a Vibrant NCDs youth advocate. He volunteers with multiple screening and health educational programs in his community. He also holds leadership roles as the secretariat of the African NCDs Network and sits as a governing council member with NCD child. He is a member of the WHO’s Civil Society Working Group on NCDs as a co-leader of the Advocacy and Communication steering group.
John Okoth Andhoga
John Okoth Andhoga is a person living with type 1 diabetes and fifth-year medical student at the University of Nairobi. Having passed through the numerous “usual” challenges in the initial stages of his diabetes diagnosis, his passion has been to help children living with diabetes lead a normal life that is free of obstacles to their ambitions. This is what drives him as a Pamojan advocate.
Meet the Panelists
Dr Frank Brennan
Palliative Care Physician and Lawyer
Frank Brennan is a Palliative Care physician and lawyer based in Sydney, Australia.
He has a strong interest in health and human rights and has written extensively on the human
rights dimensions of pain management and Palliative Care. As a junior doctor he traveled to
and worked in South Africa where he completed Diplomas in Child Health and Obstetrics.
Dr Graham Ogle
General Manager, Life for a Child
Graham is Life for a Child's General Manager and an Adjunct Professor at the University of Sydney. He trained in paediatric endocrinology in Australia, before working in Papua New Guinea and Cambodia, delivering health care to vulnerable communities for 6 years.
In 2000, he and Professor Martin Silink established the Life for a Child program with the vision: No child should die of diabetes.